How To Request Data

Any participating site may enter patient data, see Enter Data for details. Participating sites that are interested in applying to use data maintained in the International Schwannomatosis Database need to submit a Letter of Intent (LOI) and Principal Investigator (PI) biosketch (NIH format preferred) to the ISD Steering Committee for review. See the Letter of Intent Instructions for details. To request data, submit the LOI and PI biosketch for review by emailing them to: